Saturday, March 15, 2014

Slacker.

As a special needs family we have been very busy. The last post I put on here about the boys I was coming to terms with Gavin having a feeding tube put in. After our consult with a pediatric surgeon we decided to go a different route and continue working on therapy and weight gain without surgical intervention. So far we are only up about 2 pounds over all since December but our pediatrician is ok with taht because Gav is still in the 30th percentile.

The boys are doing very well over all! We have had two colds, the stomach flu, and a bought of roseola, which was scary, since I last updated. We just finally ordered some equipment for Gavin but now we have to wait for up to a year for insurance to approve and send it. He will be receiving a Kid Kart Express, Squiggles Stander, Rifton Gait Trainer, and we already received our Rifton Blue Wave bath chair (which is AWESOME!).

Since my last post we as a family (minus dad who half participates) have gone Gluten free, all organic, and limited dairy. I have lost 19 lbs since January :) and the kids have a better attention span, Gavin's eczema has improved, and we are over all feeling better and more energetic!

Ethan just tested out of occupational therapy, though we still have some mild sensory issues. His developmental testing put him at 44 months of age and hes only 30 months old. I was one proud mama. :) We are still waiting to hear if he will have an opportunity to test into public pre-k or if he is too smart and will have to try to go to a church provided pre-k here in town.

Gabe is walking! He is finally taking indenpendent steps around the house. He still has a gait and sort of walks without bending his knees but he is doing better then we ever expected!

Gav is finally starting to work with the My First AAC app on the ipad to work on communication. Unlike Gabe who can say over 200+ words and 3 word sentences now, Gav is still only saying 2-3 words total. He just doesn't have the motor planning skills to put it all together. He is also starting to sit independantly for a few minutes if you help him get into criss cross and prop his elbows on his legs or give him a toy to play with! He also has surgery scheduled for March 31st. He has two testicular hernias that have to be repaired. More on that to come!

That's all for now :) I'll just to update soon.



It's 62 degrees out and I'm itching to get outside!

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